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Mesothelioma Advocacy—What You Can Do

When someone you love has been diagnosed with mesothelioma—or has passed away from this devastating disease—you may feel helpless and overwhelmed. Sometimes it may help to honor your loved one by reaching out and making a difference in the lives of others affected by mesothelioma.

How to Get Involved

There are 2 nonprofit organizations dedicated specifically to mesothelioma and asbestos disease awareness. Both groups have developed many great ideas for how you can help raise awareness and contribute to the larger mesothelioma community.

The Asbestos Disease Awareness Organization (ADAO), which defines itself as the “voice of the victims,” is the largest independent asbestos victims’ organization in the U.S. It was founded in 2004 to give asbestos victims and concerned citizens a united voice, to raise public awareness about the dangers of asbestos exposure, and to work toward a global asbestos ban. ADAO sponsors national and international education, advocacy, and community initiatives aimed at preventing diseases caused by asbestos exposure.

The Mesothelioma Applied Research Foundation (MARF), now called the Meso Foundation, is a collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma. MARF believes it is possible to cure mesothelioma. They strive to offer hope and support by:

  • Providing education about the disease
  • Sharing the most up-to-date information about treatment options
  • Connecting patients with treatment specialists
  • Providing assistance and emotional support
  • Funding promising mesothelioma research projects around the world

Getting involved by educating people or raising money for mesothelioma research can be therapeutic. Your efforts can be big or small, and there are lots of ways you can lend a hand. Here are just a few ideas to get you started.

Be an Advocate

Contact your state representative and ask him or her to attend mesothelioma briefings on Capitol Hill. Both MARF and ADAO often hold briefings to educate legislators about mesothelioma and how medical research can help fight the effects of the disease.

Help Raise Money for Research

Make a donation in any amount to support the work of MARF. Or participate in a local “Miles for Meso” fundraising road race. If you’re not up for running, you can sponsor and cheer on a runner from the sidelines. Check online for an event near you.

Share Your Knowledge and Experiences

Be a resource. Join the conversation and share information from on your Facebook page. Help raise awareness about this asbestos-related disease by connecting with friends, family, or community members who have been diagnosed with mesothelioma.

Show Your Colors

Wear a blue “Believe in a Cure” mesothelioma awareness wristband. You’ll be amazed to see how this little bracelet can get people talking about mesothelioma. And these conversations can lead to many positive outcomes. The bracelets are available for purchase through MARF. Click here to purchase.