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Mesothelioma Support Groups

Whether you’re a patient, a family member or a caregiver, you probably have a lot of thoughts on your mind and feelings in your heart. Researching treatment options, making sure important paperwork is taken care of and doing everything in your power to understand this disease are smart things to focus on, but it’s equally important that you not overlook the emotional toll mesothelioma can take.

But who has time to talk about feelings when there are so many more “important” things to do? The truth is, support groups can make a huge difference in the mental and emotional health of anyone affected by mesothelioma. Connecting with other people who really understand what you are going through may help you begin to think clearer, release some of your stress, and become more at peace.

In-Person Support Groups

Because mesothelioma is such a rare disease, it can be hard to find local support groups that focus on this specific form of cancer. The American Cancer Society has an extremely helpful search tool on their website that can help you narrow down different types of support to find exactly what you need in your local area. You are also welcome to call one of our Mesothelioma Help Now Claim Advocates, who will be happy to assist you in finding a local support group.

Another great place to connect with these resources is through the hospital that is treating you or your loved one. We also recommend searching online. For example, here are a few respected hospitals that provide a variety of support groups:

Brigham and Women’s Hospital, Boston, MA

Memorial Sloan Kettering Cancer Center, New York, NY

The Abramson Cancer Center of the University of Pennsylvania, Berwyn, PA

The University of Texas MD Anderson Cancer Center, Houston, TX

University of Washington Medical Center, Seattle, WA

University of California San Francisco Medical Center, San Francisco, CA

Stanford Hospital and Clinics, Stanford, CA

Online and Phone Support Groups

Participating in a support group that meets online or over the phone allows you to receive support in the comfort of your own home. Here, you’ll be able to connect with real people who have been affected by mesothelioma and other forms of cancer—no matter where they live. These “virtual support groups” are a great way for patients who feel too ill to leave their home or hospital to receive the help and kindness they need so much. They are also invaluable for caregivers who need support but may not be able to leave a patient’s side. We invite you to visit these excellent resources:

Mesothelioma Applied Research Foundation
The Meso Foundation is a nonprofit organization that is dedicated to finding a cure for mesothelioma. They sponsor phone-based support groups that meet every 2 weeks and have individual groups for caregivers, patients, those who have lost their spouses, and people interested in Christian prayer. They also have private Facebook groups that you can join for online support 24/7. Because your privacy is important, you’ll have to register to receive support group phone numbers and/or Facebook group invitations.

Cancer Survivors Network
The Cancer Survivors Network is part of the American Cancer Society. Here, you can create your own blog where you can share experiences, photos, and audio. The network also offers discussion boards and a chat room where you can connect directly with other people affected by mesothelioma.

Cancer Hope Network
Cancer Hope Network is a national nonprofit organization that provides free and confidential one-on-one emotional support to cancer patients, caregivers, and family members. This person-to-person service can provide incredible emotional support, especially for those who do not feel comfortable sharing their thoughts and feelings in larger group situations.

Canadian Mesothelioma Foundation
One main objective of the Canadian Mesothelioma Foundation is to support the emotional health of patients living with mesothelioma, as well as the people who care for them. They host quite a few invitation-only Facebook groups where mesothelioma patients, loved ones, and bereaved can connect with one another.

Cancer Support Helpline
The Cancer Support Helpline is open Monday-Friday from 9am-8pm ET. It’s there for anyone who has been affected by cancer. They provide emotional support over the phone and help people find local in-person groups as well as other online/phone support resources.

Do you know of other helpful support groups we can share with mesothelioma patients and their loved ones? Please send us a Facebook message and we’ll share the information on this page.