Mesothelioma Support

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For those who have received the devastating news of a mesothelioma diagnosis, ongoing support in all aspects of life is essential. The level of support a patient and their family has during diagnosis, treatment and follow-up makes a significant difference in the whole process.

Mesothelioma Support Overview

Plenty of support options are available to patients, and they come in a variety of forms and services. Overlooked by many as having value, patients and their families should view support as one essential part of the overall treatment experience.

Here is what all patients going through mesothelioma treatment should know about asking for and receiving support:

  • Support options catering specifically to your mesothelioma diagnosis are available
  • Emotional, mental, spiritual and financial supports are available
  • People who have gone through mesothelioma treatment—and survived—are now offering support and advocacy to those currently going through similar situations
  • Entire organizations, such as the Mesothelioma Applied Research Foundation, are dedicated to supporting mesothelioma patients and their families
  • Caregivers should also seek support to maintain their own well-being
  • Receive more information on support and other important mesothelioma resources in our FREE Mesothelioma Help Guide

What Mesothelioma Support Options Are Available?

Patients should know that, although it’s a rare disease, mesothelioma has a host of support options as it’s becoming more well-known publicly. Because many of the nation’s top cancer centers have in-house mesothelioma programs, they also offer support and connections to mesothelioma patients.

Mesothelioma Patients Are Not Alone

When patients first receive their diagnosis, they may feel completely alone. While this is a totally normal reaction, patients should know that there are plenty of wide-ranging support resources ready for them to access.

Generally, cancer support options fall into a few main categories:

  • Emotional
  • Mental
  • Physical
  • Spiritual
  • Financial
  • Legal

Many support options are holistic and overlap to provide relief in multiple areas. For example, financial assistance alleviates emotional and mental burdens that come with treatment costs and logistics. Travel assistance eliminates a physical barrier by helping patients get to their cancer center of choice.

Below are some of the main types of patient support options available to you and your family.

Mesothelioma Support Groups

It’s common for patients recently diagnosed with mesothelioma to try to cope with how this happened to them. As a result, they may feel isolated. To make sense of this heartbreaking situation, patients can connect with others who are going through the same diagnosis.

Support groups are held in meetings, by phone or through online forums and have participants from all over who are also undergoing or have undergone mesothelioma treatments. Having someone to relate to can offer tremendous emotional and mental relief and help in the grieving process.

The most effective support groups are typically those in which you physically meet together. However, since mesothelioma is such a rare disease and travel can be difficult while undergoing treatment to meet with several patients, many have found solace in alternative meetings such as a one-on-one phone call and online forums.

One of the largest providers of mesothelioma support groups is the Mesothelioma Applied Research Foundation (MARF). This national non-profit organization raises funds for ongoing research and patient advocacy resources. They host bi-weekly telephone meetings for patients, caregivers and spouses and manage a handful of Facebook groups.

Mesothelioma Survivors Networks

Though mesothelioma is considered incurable, there are a few stories of survivors who beat the odds. Survivors typically underwent aggressive surgeries and multiple rounds of chemotherapy and were treated with new, novel therapies.

The one thing these survivors have in common is their will to live and their self-empowerment to take control of their own health.

Mesothelioma survivors and patients who have already undergone treatment can help current patients by sharing their stories. They can offer clear guidance and outline what the patient can expect as they move forward in their treatment process. Many survivors and their families act as resources for current patients.

Learn About Support Options That Best Fit Your Needs

Mesothelioma Help Now is a FREE resource for patients and families. They can help you understand emotional, mental, spiritual, and financial support options available. Call 24/7 to speak with a live patient advocate.

Request Your Free Mesothelioma Help Guide Now

Counseling and Therapy

Though it’s important to connect with other patients, it’s also important to seek professional counseling if you feel you need it. It’s normal for patients to develop depression and anxiety after a diagnosis. Professionals have the experience and compassion to identify and treat mental health symptoms.

Patient Counseling Options

Many cancer centers offer in-house counseling services. However, patients may choose to seek counseling on their own by finding a therapist who they can open up to.

If you’ve been recently diagnosed with mesothelioma and are struggling with symptoms of depression or anxiety, contact a trained therapist or counselor today.

Travel Funding and Options

The top mesothelioma treatment programs are at cancer centers located in major cities across the nation. Unfortunately, for patients residing in rural regions or areas outside these major centers, travel is required.

Patients and their families are already burdened by the diagnosis and additional financial stresses–travel costs are the last thing families want to struggle with. Many patients have to make several trips to the treatment facility, and the expenses can add up quickly.

Various organizations sponsor families and connect them with free or discounted airfare. Some organizations even arrange for patients to fly privately to the city where their cancer center is located.

Accommodations and Housing

Families also need to consider the costs of accommodations and lodging when they travel for treatment. Many organizations raise funds to sponsor families and cover these costs.

Hotels located near hospitals sometimes offer discounted accommodations while patients receive treatment. For veterans, Fisher House Foundations are located on the grounds of major VA hospitals and veterans can apply to stay here while undergoing treatment.

Many cancer centers themselves also have housing options for families traveling from out of town. Unfortunately, these are usually in high demand, as cancer centers treat thousands of patients.

Financial Support and Compensation

All mesothelioma patients should know about the legal and financial compensation options available to them.

People who developed mesothelioma are victims of negligence by asbestos product manufacturers. Today, it’s well-known that companies knew of asbestos health risks but chose to hide the facts and continue selling their products.

Legal Process for Asbestos Lawsuits

When the truth came out about the dangers of asbestos, the legal system established grounds for lawsuits against manufacturers to compensate parties who suffered. Today, tort law (civil wrongs) surrounding asbestos is one of the longest-running mass lawsuits in the country.

In addition to pursuing legal compensation for your treatment costs and other damages, there are additional services and programs for civilians and veterans that can provide financial assistance or complete coverage for medical expenses.

Here are some of the legal and financial assistance options that may be available to you:

  • Private Health Insurance: If you’re on a private health insurance plan, then you likely qualify for full or partial coverage of your medical bills and other costs associated with undergoing treatment. The nation’s largest cancer centers are fully equipped to work with dozens of insurance providers and can help you with your insurance claims.
  • VA Benefits: Veterans who were exposed to asbestos during their years in active duty, and who have since developed mesothelioma, may be eligible for compensation through Veterans Affairs. Find out more about VA disability benefits and eligibility.
  • Government Assistance: Mesothelioma patients may be entitled to government financial assistance to cover healthcare costs. Medicaid is a federal healthcare program that assists low-income families. Medicare is a federal healthcare program that provides funding to those who are over 65 regardless of income.
  • Legal Compensation: Victims of asbestos exposure, including mesothelioma patients, can go through a legal process to receive compensation from asbestos companies. These companies have been deemed responsible for many of the health problems resulting from asbestos exposure. By hiring a mesothelioma lawyer, you and your family can obtain financial compensation through a mesothelioma lawsuit to cover damages and treatments.
  • Asbestos Trust Funds: Billions of dollars from bankrupt asbestos manufacturers have been placed into trust funds. Victims of asbestos exposure, through legal means, can access compensation from these trust funds to help pay for treatments and cover other damages. Patients can work with mesothelioma lawyers to help them file a claim and receive compensation quickly.

Treating mesothelioma effectively requires specialized medical care. Patients often undergo multiple forms of treatment over an extended period. These costs add up, and without adequate insurance coverage, the surmounting financial burden can create further stress to an already difficult situation. Filing a claim with a legal professional may help reduce or eliminate financial burdens.

Connect With A Mesothelioma Doctor Today

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Veterans Mesothelioma Support and Counseling

The tragic nature of asbestos and how it was used means that a large group of mesothelioma victims are veterans. Asbestos was used extensively throughout the armed forces and, as a result, veterans of all ages and ranks were exposed on an ongoing basis.

Veterans have support resources available to them outside of civilian programs. One of the largest support networks for veterans suffering from health conditions like mesothelioma is the National Veterans Foundation (NVF).

Veteran Support

The National Veterans Foundation is run by veterans for veterans and offers a range of assistance from food to finance. They also host various crisis lines available to all active and non-active duty members.

It’s normal and understandable for veterans diagnosed with mesothelioma to undergo emotional distress, and lifelines like those offered by the NVF can help veterans through trauma. There are also resources dedicated specifically to women veterans for assistance on all issues healthcare-related or otherwise.

Mesothelioma Hospice Care

Hospice care is a healthcare philosophy that focuses on the end-of-life needs of chronically ill patients. Hospice care providers focus on the basic needs of the patient to improve their quality of life as they live out their remaining months or weeks.

Patients who choose hospice care can have their treatment tailored to their exact needs from physical to emotional to spiritual care and support.

Healthcare workers who specialize in hospice and palliative support are extremely compassionate and attentive. Often, hospice care workers also will get to know the immediate family members. As they learn more about the patient and their family, they can recommend certain types of care or counseling services as well.

Some of the ways that hospice care workers support end-of-life patients include:

  • Pain management and treating symptoms to improve quality of life
  • Emotional support for the patient and their family through compassion and understanding
  • Relieving the primary caregiver from their role to give them time and space to recharge
  • Versatile support ranging from weekly to daily to round-the-clock

Choosing Hospice Care Support

If you or your family members are considering hospice care as a support option, it’s important to find someone who is experienced, compassionate and is a good fit for your unique needs. Ask about their care philosophy, past experiences in dealing with cancer patients as well as what’s unique about their approach to hospice care.

Patients should also know that if they’ve chosen to go with hospice care, it doesn’t mean they’re giving up or choosing defeat. Some patients simply stop responding to treatments provided at cancer centers, and hospice care simply becomes a better option for improving quality of life.

Mesothelioma Awareness and Advocacy

Mesothelioma awareness is growing due to it being related to asbestos exposure and the number of cases that have developed in recent years. Many patients and families who go through a mesothelioma diagnosis and treatment go on to become fierce advocates for research, treatment development and raising awareness.

There are several awareness and advocacy programs and organizations available to patients, family members and those who wish to become patient advocates.

Some of the top mesothelioma advocacy groups include:

Asbestos Disease Awareness Organization (ADAO)

  • The ADAO is a non-profit seeking to achieve a national ban on asbestos and raise awareness of asbestos-related diseases through education, advocacy and community.
  • asbestosdiseaseawareness.org

American Cancer Society

  • A nationwide voluntary health organization, the American Cancer Society is dedicated to eliminating cancer through funding and conducting research, sharing information and patient support.
  • (800) 227-2345
  • www.cancer.org

Canadian Mesothelioma Foundation (CMF)

  • Since 2008, the CMF has been supporting mesothelioma patients and their families by establishing a network of experience related to mesothelioma diagnosis, treatment and care. The CMF is available to Americans as well.
  • (416) 417-5544
  • www.cmfonline.org

Mesothelioma Applied Research Foundation

  • The Mesothelioma Applied Research Foundation unites doctors, researchers, patients, families and legal advocates in a collaborative effort to advance mesothelioma research and awareness.
  • (877) 363-6376
  • www.curemeso.org

Get The Support You Need

The Mesothelioma Help Guide is a FREE resource that guides patients and family members through their support and treatment options for improving prognosis.

Request Your Free Mesothelioma Help Guide Now

Seeking support is a critical element for mesothelioma patients and their families as part of the overall treatment process. Knowing you’re not alone and that you have a variety of help options makes it easier to cope with your diagnosis.

If you’ve recently been diagnosed with mesothelioma, don’t delay in getting the support you need. Our Patient Advocates are ready to speak with you 24/7. Get connected with the support options you need now. Speak with a Patient Advocate immediately at (800) 584-4151 or receive our FREE Mesothelioma Help Guide to better understand your full range of support resources and treatment options.

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Sources
  1. Mesothelioma Applied Research Foundation, “Mesothelioma Support Groups.” Retrieved from: http://www.curemeso.org/site/c.duIWJfNQKiL8G/b.8578697/k.ACBF/Mesothelioma_Support_Groups.htm. Accessed on November 17, 2017.
  2. American Cancer Society, “Find Support Programs and Services in Your Area.”, Retrieved from: https://www.cancer.org/treatment/support-programs-and-services.html. Accessed on November 17, 2017.
  3. Canadian Mesothelioma Foundation, “Compensation.” Retrieved from: http://www.cmfonline.org/?q=node/56. Accessed on November 17, 2017.

Last modified: January 16, 2019